MedGenome, Aster CMI organise educative programme on rare diseases

MedGenome Labs, a genomics and clinical data driven diagnostics and dr...

March 4, 2019 | Monday | News
LSDSS appeals to PM for pledged Rs 100 Cr for treating rare diseases

Lysosomal Storage Disorders Support Society (LSDSS), a non-profit orga...

February 28, 2019 | Thursday | News
Sanofi Genzyme observes Rare Disease Day in India

Sanofi Genzyme, the specialty care global business unit of Sanofi...

February 28, 2019 | Thursday | News
Race For 7 sees participation from rare disease patients in Mumbai

‘Race For 7’, an initiative championed by the Organization...

February 25, 2019 | Monday | News
1 in 20 Indians Affected by a Rare Disease: ORDI

The Organization For Rare Diseases India (ORDI), a not for profit orga...

February 22, 2019 | Friday | News
Delhi commemorates Rare Disease Day

On the occasion of Rare Disease Day, Lysosomal Storage Disorders Suppo...

March 1, 2018 | Thursday | News
World Rare Disease Day- Prevention of Sickle Cell Disease: Early screening and awareness, ‘A MUST’

There are about 2, 75,000 infants born with sickle cell anemia every y...

February 28, 2018 | Wednesday | Features
Race for 7- Bengaluru & Mumbai walk for Rare Diseases

Lending their collective voice to the rare disease community in India,...

February 26, 2018 | Monday | News
Sanofi Genzyme reaffirms its support towards rare diseases in India

Sanofi Genzyme, the specialty care global business unit of Sanofi...

February 26, 2018 | Monday | News
NDF collaborates with PerkinElmer for rare disease research

US based Neuromuscular Disease Foundation (NDF) is launching an allian...

January 4, 2018 | Thursday | News
AZ sells rare disease drug to Genzyme

Genzyme made an upfront payment to AstraZeneca of $165 million to acqu...

October 7, 2015 | Wednesday | News
Sanofi buys rare disease therapy from AstraZeneca

Sanofi and its subsidiary Genzyme have announced that they have entere...

July 27, 2015 | Monday | News
'1 in 20 Indians suffers from a Rare Disease'

There are close to 7000 known rare diseases today, most of which are p...

February 29, 2016 | Monday | News
BIB 2015: Stem Cells, Bio Medical Innovation, Rare Disease & Orphan Drug Vaccine Research take centerstage

The second day of the 15th edition of Bangalore India BIO was dotted w...

February 11, 2015 | Wednesday | News
Will rare diseases remain orphan?

Despite medical advancements, rare diseases are still a common occuren...

January 20, 2015 | Tuesday | Features
Often neglected, rare diseases now have a collective voice

India is home to an estimated over seventy million patients affected w...

February 19, 2014 | Wednesday | News
Karnataka to introduce a rare disease policy soon

Karnataka government is all set to introduce a policy for rare disease...

March 13, 2015 | Friday | News
Bangalore runs to raise voice of rare disease patients

The objective was to raise awareness for the 70 million estimated pati...

February 29, 2016 | Monday | News

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