For most patients with rare diseases, finally receiving a diagnosis is...
In November 2021, Takeda Pharmaceutical together with United Nations G...
Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...
ImpactGuru.com, an integrated healthcare financing platform, has repor...
Rare Disease India Foundation (RDIF) a national patient advocacy group...
The Organization for Rare Diseases India (ORDI) has announced the seve...
Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...
Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...
On Rare Disease Day 2021, Indian Society for Clinical Research (ISCR) ...
To chalk out solutions and to address the key challenges of rare disea...
India is grappling with the challenges posed by rare diseases. The abs...
Estimates indicate that over 70 million people are affected ...
The Organization for Rare Diseases India (ORDI), a not for profit orga...
The rare genetic disease CDKL5 Deficiency Disorder (CDD) has been desi...
Government of India had formulated a National Policy for Treatment of ...
Takeda has announced the launch of its Enzyme Replacement Therapy port...
With the new Government taking the chair, rare disease patients in Ind...
Observing Rare Disease Awareness day on 28th February 2019, Dr. Lal Pa...
