Govt announces customs duty full exemption for all drugs used in rare diseases treatment
Policy & Regulatory | News | 0 Comment
The Central Government has given full exemption from basic custom...Read more
AstraZeneca expands portfolio by bringing rare disease therapy for patients in India
Pharma | News | 0 Comment
AstraZeneca India has announced its entry into rare disease therapy in...Read more
MedGenome Labs unveils FSHD1 genetic screening test for rare disease diagnosis
Medical Diagnostic | News | 0 Comment
Bengaluru-based MedGenome Labs has announced the launch of a ...Read more
Rare Diseases Need Not Be Neglected Anymore
Healthcare | Features | 0 Comment
The death of a 13-year-old Ghaziabad boy suffering from Hunter Syndrom...Read more
Addressing ‘Orphaning’ of Rare Diseases
Opinion | Views | By Ravi Shet, Clinical Data Management Professional | 0 Comment
To tackle any disease requires sustained research and development (R&a...Read more
Sanofi to bring new therapies of rare diseases to India
Pharma | News | 0 Comment
Sanofi Speciality Care has reaffirmed its commitment to rare diseases ...Read more
Research centre for rare diseases opens in Bengaluru
Healthcare | News | 0 Comment
The Karnataka government has launched a research and training unit for...Read more
Challenges and strategies for rare diseases trials
Opinion | Views | By Daniel Chancellor, Thought Leadership Director at Informa Pharma Intelligence | 0 Comment
For most patients with rare diseases, finally receiving a diagnosis is...Read more
Takeda, UNGCNI initiative strengthens access to rare disease treatment in India
Healthcare | News | 0 Comment
In November 2021, Takeda Pharmaceutical together with United Nations G...Read more
Dr Sheela Nampoothiri joins ICMR's Rare Diseases National Consortium's expert committee as co chair
People | News | 0 Comment
Sheela Nampoothiri, Head, Paediatric Genetics, Amrita Hospitals, Kochi...Read more
ImpactGuru's crowdfunding campaign raises Rs 125 Cr for rare disease patients
Healthcare | News | 0 Comment
ImpactGuru.com, an integrated healthcare financing platform, has repor...Read more
Rare Disease India Foundation issues urgent demands for ensuring treatment
Healthcare | News | 1 Comment
Rare Disease India Foundation (RDIF) a national patient advocacy group...Read more
ORDI's 7th Edition of Racefor7 to raise awareness on rare disease
Healthcare | News | 0 Comment
The Organization for Rare Diseases India (ORDI) has announced the seve...Read more
Takeda India introduces diagnostic programme for rare diseases
BioPharma | News | 0 Comment
Takeda has announced ILLUMINATE - a rare disease diagnosis programme t...Read more
Rare Diseases Policy 2021 focuses on indigenous research for treatment
Policy & Regulatory | News | 1 Comment
Dr Harsh Vardhan, Union Health & Family Welfare Minister approved ...Read more
ISCR reiterates need for investment in rare diseases research
Healthcare | News | 0 Comment
On Rare Disease Day 2021, Indian Society for Clinical Research (ISCR) ...Read more
Karnataka Govt, PPHF chalk out solutions, address key challenges for rare diseases
Healthcare | News | 0 Comment
To chalk out solutions and to address the key challenges of rare disea...Read more
Takeda India reaffirms commitment on World Rare Disease Day
BioPharma | News | 0 Comment
India is grappling with the challenges posed by rare diseases. The abs...Read more