Friday, 01 July 2022

ORDI's 7th Edition of Racefor7 to raise awareness on rare disease

19 February 2022 | News

The event will be held on Feb 27 and registrations will close on Feb 20

The Organization for Rare Diseases India (ORDI) has announced the seventh edition of Racefor7, a 7km event being held on February 27th to raise awareness for the rare disease community in India. Racefor7 symbolically represents the 7000 known rare diseases, the estimated 70 million rare disease patients in India and the average of 7 years it takes to diagnose a rare disease. Participants can run, walk or even cycle 7 kilometres wherever they are located to lend their support for rare diseases. Race for 7 is held every year in February to commemorate Rare Disease Day which falls on the last day of the month.

 

Prasanna Kumar Shirol, Co-founder and Executive Director of ORDI, said, “We invite the public across the country to participate in this event to show they care for rare and help draw greater attention of policymakers and other stakeholders to the specific needs of rare disease patients.”

 

All participants will receive a t-shirt bearing the name of one rare disease to help spread awareness, finisher medals and e-certificates.

 

Registrations close on February 20.

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